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August 20, 2008 Dr. Richard F. Daines Dear Commissioner Daines: On behalf of those impacted by the hepatitis C virus (HCV), in New York State, we write to you today to thank you for your continued efforts and commitment to hepatitis C Our organizations serve New Yorkers with or at risk for hepatitis C and other diseases. Although funding of $1.58 million was included in the fiscal 2008/09 budget, we recognize that the New York State Department of Health (NYSDOH) and the HCV community as a whole need more funding to address this growing public problem in an effort to overcome barriers for patient access to care and effectively lessen the burden of costs associated with HCV. We are aware that the bulk of the 2008/09 funding will be used in a three step approach to enhance access to HCV care and treatment, improve access to free HCV testing, and to provide education through social marketing. Advocates certainly applaud this approach and all the work done by the NYSDOH and its partners, but we also recognize that $1.58 million is just not enough. Clearly, additional monies are needed to address the 237,000 individuals chronically infected in New York State (and by all credible accounts is both under diagnosed and under-reported). We believe that an additional $2.5 million in the fiscal 2009/10 budget is the minimum necessary to sustain and expand this effort and to provide resources to further the development of a NYS Comprehensive HCV Program. HCV infection has a significant economic impact to the State of NY, and its morbidity and mortality underscores the need for prevention, early detection and early medical care and treatment. It is estimated that only half of the persons infected with HCV know their status. We are anticipating the release of the HCV Rapid Test Kit, which will have a significant impact on how people get screened and become aware of their hepatitis C status, but again funding is necessary to provide access to testing and garner further participation from community based organizations to deliver these services, especially for persons in high-risk settings, (e.g., drug treatment programs, needle exchange, etc.). Hepatitis C is the number one blood-borne disease in this state and country. We must remain fully focused and take measures to deliver services without delay for those impacted by this disease, not only is it fiscally responsible but more importantly it benefits society and is a humane and appropriate response. We are available to you and your staff to more fully discuss this matter. Many thanks for your efforts on this issue and we look forward to your response. Sincerely, ______________________ Cc: Laura L. Anglin, Director, DOB Cc: Commissioner Karen M. Carpenter-Palumbo |
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